From: Assessment of disease knowledge gaps among beta thalassemia major patients and their caregivers
Variable | Group | N | Median score | Range | P value |
---|---|---|---|---|---|
General Knowledge (3) | Both | 15 | 100% | 33–100 | 0.875 |
Parent | 44 | 67% | 33–100 | ||
patient | 31 | 67% | 33–100 | ||
Symptoms and signs (4) | Both | 15 | 100% | 50–100 | 0.354 |
Parent | 44 | 75% | 0–100 | ||
patient | 31 | 75% | 0–100 | ||
Treatment (4) | Both | 15 | 75% | 25–100 | 0.098 |
Parent | 44 | 75% | 0–100 | ||
patient | 31 | 75% | 50–100 | ||
Prevention (2) | Both | 15 | 50% | 0–100 | 0.116 |
Parent | 44 | 50% | 0–100 | ||
patient | 31 | 50% | 0–100 | ||
Transfusion complications (14) | Both | 15 | 36% | 21–86 | 0.309 |
Parent | 44 | 36% | 0–71 | ||
patient | 31 | 36% | 0–64 | ||
Chelation therapy (9) | Both | 15 | 22% | 0–89 | 0.058 |
Parent | 44 | 22% | 0–89 | ||
patient | 31 | 33% | 0–78 | ||
Total score (36) | Both | 15 | 50% | 33–89 | 0.3 |
Parent | 44 | 47% | 8–72 | ||
patient | 31 | 53% | 19–75 |