Table 2 Questions and percent of correct responses:
From: Assessment of disease knowledge gaps among beta thalassemia major patients and their caregivers
Questions | Percent of correct responses |
|---|---|
1.Beta thalassemia major is a genetic disease | 72% |
2.Beta thalassemia major leads to decrease in number of red blood cells | 91% |
3.Symptoms of beta thalassemia major appears several months after birth | 74% |
4.Beta thalassemia major affect growth and physical activity | 83% |
5.Splenomegaly occurs in beta thalassemia major | 93% |
6.Blood transfusion is considered the main treatment of beta thalassemia major | 89% |
7.Sometimes beta thalassemia major patients need to remove their spleen | 93% |
8.The probability of giving birth to a thalassemic child if both parents are carriers is 25% | 28% |
9.For prevention of beta thalassemia major, genetic counselling and investigations should be done premarital | 86% |
10.Filtered blood should be used to prevent febrile reactions during transfusion | 47% |
11.Washed blood should be used to prevent allergic reactions during transfusion | 51% |
12.Desferal is given by pump over 8-12 hours subcutaneously | 40% |
13.Iron overload can be monitored by ferritin level | 42% |
14.The most common complication that can occur during blood transfusion is fever | 41% |
15.Symptoms of thalassemia major include jaundice | 83% |
15.Symptoms of thalassemia major include pallor | 59% |
16.To maintain health of thalassemia major patient, folic acid tablets should be given | 52% |
16.To maintain health of thalassemia major patient, iron chelation therapy should be given | 43% |
17.Complications of blood transfusion can occur immediately on beginning of transfusion | 48% |
17.Complications of blood transfusion can occur after the transfusion | 41% |
18.Viruses that can be transmitted through blood transfusion include hepatitis C virus | 60% |
18.Viruses that can be transmitted through blood transfusion include hepatitis B virus | 14% |
18.Viruses that can be transmitted through blood transfusion include human immunodeficiency virus (AIDS) | 6% |
19.Symptoms of acute hemolytic reaction include hypotension | 19% |
19.Symptoms of acute hemolytic reaction include fever | 23% |
19.Symptoms of acute hemolytic reaction include dark urine | 79% |
20.Delayed complications of blood transfusion include transfusion transmitted viral infection | 12% |
20.Delayed complications of blood transfusion include iron overload | 60% |
20.Delayed complications of blood transfusion include delayed transfusion reactions | 11% |
21.Iron overload can cause glands disorders | 13% |
21.Iron overload can cause growth affection | 28% |
21.Iron overload can cause cardiac disorders and liver affection | 48% |
21.Iron overload can cause short stature | 21% |
22.Iron chelating drugs include Desferal | 41% |
22.Iron chelating drugs include Deferasirox | 37% |
22.Iron chelating drugs include deferiprone | 22% |